Monday, March 21, 2011

The Plan

We had another busy week full of appointments.  When I looked at my calendar the Friday before last, I breathed a little sigh of relief when I saw that we only had one appointment on deck for the next week.  Fast forward to later that night and we were up to four appointments.  The two biggies were endocrinology follow-up and a meeting to discuss Aurelia's Individual Family Service Plan (IFSP).  Endocrinology included some blood work with results still on the way, so I'll wait to update on that.  And can I just say that I truly hate blood draws?  It didn't help that the 30 minute wait at the lab was quickly butting it's way into nap time.  Poor Aurelia does not have good veins and sustained three pricks, precious little lamb.  There was a lot of calming and cuddling after that appointment.

The IFSP meeting was a lot more encouraging, productive, and exciting.  First, it was great because our Family Resource Coordinator, assessment therapist, and speciality service therapist came to our home.  Most of our early intervention services will be done in home.  It's nice to have one less appointment across the bridge.  Second, Joey was able to skype into the meeting and help make our plan.

We spent the first bit of time going through Aurelia's complete file and assessment.  She scored at 2-3 months in most areas and 4-5 in a few.  We were excited that she scored high on social-emotional and cognition sections.  Her lowest scores were in physical and adaptive sections.  Everyone agreed that a lot of her low scores were closely related to vision.  

After going over her assessment, Joey and I set our priorities and goals for the next 6-12 months of Aurelia's development.  So, here's the plan:

-Our first goal is that Aurelia would begin exploring the world around her.  This includes reaching for toys, people, things, food, etc.  Right now, Aurelia will only grab something if it's placed on her chest or in her hands.  If she drops the toy I've given her, it's like it never existed to her.  I dangle toys in front of her right out of her reach and she just smiles or looks to the side.  Our hope is that she will begin to reach for things around her when on her tummy, her back, sitting (which she isn't doing yet, but we're working on it), and all other positions.  We would like her to be able to entertain herself by picking up toys and playing with them.

-Our second goal is that she would tolerate tummy time for a longer period of time.  She doesn't mind being on her tummy for the first minute or two, but after that she gets a little agitated.  She has trouble pushing up on her arms and would much rather just lay her head down on the ground.  Getting better at tummy time will reflect a general strengthening of her entire body.

-Our next goal is that she would begin to eat solid foods.  We've tried some, but she pushes most of it out of her mouth and chokes on the rest of it.  Some of this may just be getting used to solids.  A lot of it is tied to her vision impairment.  She almost jumps every time the spoon hits her mouth because she doesn't see it coming.  But just 'cause she's so dang cute, here's a picture of her first day of solids:

-And our final goal is that she would sleep for five to six hours at night and take two or three 45 minute or longer naps again.  I can't wait for this goal to be achieved.  We're still getting up three or four times a night.  It's pretty exhausting.  

We'll have a therapist come to our house weekly to help us work on these goals.  And as once she achieves any of these goals, we'll go back to the drawing board and chose a new one to work towards.  We have our work cut out for us.  But Aurelia continues to show us that she is quite the little fighter.  


Dawn said...

Love the picture! Aurelia is so adorable. You guys are both such awesome parents and I will pray you reach these goals soon. *HUGS*

Melissa Rowe Smith said...

I'm so glad I saw this! I was just thinking last week that I wanted to call you and see how you were doing & catch up. We've only heard news through the grapevine (Chessmans), but now that they are moving, I will have to be more proactive about talking to you guys. It sounds like you're hands are full, so let me know when's a good time to chat.

You, Joey, and the beautiful Aurelia are ever in our thoughts and prayers.

I can't wait to meet her & for her to meet Moses (our incubating lil boy)!

Jocelyne said...

The dedication you and Joey have for your precious flower is heartwarming. I continue to pray for the family as Aurelia continues to make progress. Keep going strong as you visit specialists and therapy sessions at home.

Jacob and Carlee Loya said...

ive said it before & i'll say it again - your babiest is so lucky to have the best parents in the world. i know it comes naturally to you, but your advocacy for your child is inspiring & is truly the definition of love. you're amazing. and she, well, she could not be any more precious. thanks for the update, love you.