No, we haven't dropped off the face of the planet. We have been extremely busy, which does not allow for blogging. However, there is a lot to catch up on from November. There's too much to catch up on in one post. When Dad and Mary got married, one of the questions Mary would ask us at the end of the day was "FSGBB?" We'd tell her something FUNNY, SAD, GOOD, BAD, and BEAUTIFUL. I think this was her way of getting around the one word teenage answer to "How was your day?" I still use FSGBB when life feels like a whirlwind (i.e. the last few months).
FUNNY- While preparing to write this post, I googled "FSGBB" to see if anyone else uses it. The answer is no. However, google did find an Urban Dictionary definition for "fsgbb." Apparently, someone somewhere has decided that "fsgbb" stands for "Fuzzy Sex God in Big Boots" with tag lines including Captain Morgan and Beer Pong. Kids these days, so strange.
SAD- Aurelia was diagnosed with Cortical Visual Impairment (formerly known as Cortical Blindness) at her Opthamology appointment. In the most basic terms, CVI is a problem with the neurological processing of vision. Her eyes and nerves work fine, but she cannot process the images she is viewing. Certain things are more difficult for her to process, such as faces. At this point we do not know what her CVI will look like longterm. It's another one of those diagnoses that has a vast range of possibility. Read more about CVI here. The hardest part of the CVI diagnosis is the confirmation that there was brain damage.
GOOD- We leave for Duke tomorrow. Round 2 of Aurelia's blood re-infusion is Tuesday. These trips to Duke give us such hope. We're praying that the stem cells in the cord blood will help repair the parts of her brain that have been damaged. And there's also the added bonus that we get to see Joey's parents.
BAD- My extended family has been through a lot in the last few years. Currently, my mom's side of the family is going through a very hard, very tragic time. We experienced an unexpected loss and are dealing with the aftermath of the traumatic circumstances.
BEAUTIFUL- It's always nice to end on something beautiful.
BEAUTIFUL- It's always nice to end on something beautiful.
Isn't she just the cutest thing ever? She is such a joy! We are so blessed to be her parents.
5 comments:
Thanks for posting this. Aurelia is blessed to have such awesome parents, and we're blessed to have you guys as friends. Sure do miss you both.
AND she is beautiful. SO beautiful. Joshua & I were jealous that the Chessmans got to see and HOLD her. ahhh! We wished we could of time-warped from our family's christmas time to East Texas to see this precious one. Maybe next time? (We can time-warp or just get in the car & drive).
Know that you are love & prayed for.
I like that FSGBB. I'm gonna steal it, but don't worry, I will give credit for the creation to whom it's due. . .
My favorite picture of her!!! - (you know - the one with my tree in the background of course!). I was so blessed to get to spend that time with all of you. Thank you for being such a transparent and LOVEABLE family!
~Cynthia
(aka AuntieC if you like) :-)
She IS the cutest thing!! Praying for your time @ Duke, your time together, etc. Thanks for the update!!
Sorry to hear about the news of Aurora's vision impairment, but I hope that your trip to Duke was successful and that the stem cells will greatly benefit her! Thanks for the update and the pictures are too cute :)
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